More Pups to Arrive Soon!

           DEVON'S STORY
This below is the "life" of Devon, it is not meant to "gross" anyone out or
make you uncomfortable (I understand it has made some upset that
I would write such awful stuff about a little child) Well this is real and in our
daily lives, so deal with it or don't read
this.
Updates will be dated in red.
Baby Devon is my youngest grandson, my youngest daughter's youngest
child. He is the most adorable baby you could ask for. Always
happy and with a quick smile for everyone. We now know Devon has what
is called Ontogenesis Imperfecta ( Brittle Bone disease). We believe it is
the type 2, that is the better of the 4 types.   We do believe that Devon will
walk. He may be physically slower then average, but mentally is average
or could be above average.
We had thought he had Femoral-Facial Syndrome, that is what Shriners
had diagnosed early this year. But after Genetic specialist we now know
different. As of Dec. first he no longer has to be hitched up to the
monitor that let us know when he stopped breathing.
March 5, 2001:
Devon has a broken leg, today had it set. He has brittle bone disease.
Today was his first broken bone, and today is his momma's Birthday
. . . Gee . . . Happy Birthday momma!   Picture below.
May 6, 2001:
Devon broke his collar bone this morning. And seeing the ex-rays it
was discovered that he had cracked three ribs since the broken leg only
2 months ago. Seem impossible that we didn't know he had but Doctor
says yes with Brittle Bone it can happen. So now Devon has a soft
brace type contraption on his shoulders/neck.
June 7, 2002
Well, here we go again. Devon was ready to be taken out of the bath
tub, towel around him and he sat back down. He sat more on his one
leg then the other and . . yup, broke the other leg. So back to the hospital
and five days later he is now back home with his waist to tippy toe cast
on, but the "good" part, he's back in the wheel chair. And he loves that
wheel chair.
Aug. 26, 2002
Devon is doing great. We came across this web (at the bottom of this
page of a young girl with the same disease he has and is now in her
early twenties. This is her web address in case you would like to see
what this disease is affecting her.
We guess we can expect some of the same for our Devon.
May 18, 2004
Devon broke his right leg again. (three times for this leg) All he did is
turned wrong and went down with broken leg. He had surgery this
morning. Cast from waist to ankle. Has his wheel chair back. He
almost made it to his fourth birthday (June 16) without a broken bone
for the year.
Sept. 1, 2004
The X-Ray below is Devon's legs. They put a larger rod in the right femur
(May 18). I'm going to make this a short version of what happened. All within
a two week period he had both legs in a cast. up to his chest. He has had the
cast off about three weeks now. But on Sept. 7 we go back so they can "fix"
the right leg's rod, they will hammer it down as it is up in his hip to far. He
is unable to walk as it is. They will also put a larger rod in the left leg. Then
back home with that awful full cast on again both legs up to his chest. We
still can't get over how strong and brave he is for a 4 year old! As you may
remember his femur bones were in the shape of an "S" when he was born.
They have gotten pretty straight in the past 4 years.
CLICK ON PICTURE TO SEE LARGER.
You can click on picture below...

AND / OR go to www.oif.org
Sept. 1, 2005
Well it has been awhile since I wrote about Devon.
He is now in first grade doing well. He has broken
his femur a few times more and he has a rod in both
femurs and has had the replaced a few times. He is
in his wheel chair again as he bent the rod the last
time he fell and broke the leg but is able to walk
without his walker most of the time.
Devon at "Build A Bear" party:

Devon loves to play basket ball
***************
Below, Devon with his three sisters Dec. 7, 2003
Four days before he broke his leg again.